You're having a really tough time, nubiene, & it may not resolve itself very quickly. Here's a link to the fibromyalgia forum:
http://neurotalk.psychcentral.com/fo...aysprune=&f=12
Stop by, ask questions, get to know the folks. You may not find anyone in your exact situation, but you'll come close.
I was diagnosed with chronic fatigue syndrome back in the 1980s, but that was in California where luckily I was living then. In most of the rest of the US, I would probably have gone undiagnosed. I'm having similar problems again, but after 8 yrs no answers. Fibromyalgia is mentioned, but it's still in the category that CFS was for lots of medicos. Some aren't convinced it's really organic, or at least that's my experience.
Take a deep breath when it gets bad. Keep coming back. Keep asking questions.
Prayers.