The program is 4 weeks long 5 days a week... includes physical therapy, shrink, bio/neurofeedback, and weekly nerve blocks not sure how many a week, and spinal cord stimulation trial.....thats not including food, transportation, or hotel... highway robbery

For me I know what works for me: Ketamine infusions every 3 months medication and going to the gym 4-5 days a week, and spending time with people. I am very active and am have the drive to move and do things through the pain. He wanted to put another stimulator in me for my leg and other arm and i said HEEEEELLLL to the no. I can not go through another surgery. He feels like "little" things set me off bad... which I dont understand... how is having wisdom teeth out (them leaving a chip of bone in and getting 4 abesses and every abcess they have to go in cut open my gum and scrape around to try to find what is causing it), after having ketamine being in the hospital at the hospital still, having one of those heavy suction doors slammed on my hand while I was under anesthesia from ketamine still... getting pushed down a flight of wood stairs outside and summersaulting down and then hitting gravel on my face... those for a person WITHOUT rsd it would be painful- let alone a person WITH rsd.
I have finally found what works so I can live my life, and now he wants to change everything... and i know its bad to think, but he pockets a shitload of money from the program and I just dont want to do it. If i wasnt walking, or couldnt use a limb like I was 3 years ago I would think about it and consider it immensely because I would NEED all of that treatment... but it just doesnt make ANY SENSE for me right now at my stage of rsd. I have learned how much i can and cant do and what medications to take to allow me live. I still live in bad pain, but I am not suffering all the time. When I start to suffer and mentally cant handle how bad the pain is... I go in for another ketamine infusion and it decreases the burning pain. SO... I found my road.... and I am just so frustrated and have no idea how to handle this when I am in a sense being pushed pushed. I have my mom on my side and when we go in next we have to handle this, but I need to do it wisely because I dont want to lose my doctor. He is the only dr that gives high amounts of ketamine and I have been with him for years, But i need to get to the bottom of this and really need some advice coming from other patients who deal with doctors that need a kick in the bum. LOL Am I making sense?