Teen I am sorry you ended up in the hospital. When is your neuro apt? I would keep calling for a cancelation to get squeezed in. I agree it is important to rule out other conditions. I always fear I will brush something off as rsd and it be something different. Did they discuss maybe a med that is used for migraines? Hope you feel better

Hannah I can so relate as I tend to not go out in the sun much from my eyes too. I made my bedroom into a dark room with the black out shades. Now my ears seem to be similar to my eyes