How wonderful to meet you, out here searching for answers on behalf of a family member. Bless you. You will find many like yourself here, & I know how rare you are--having sought answers for my Alzheimer's dad, I know in my bones just how daunting your quest.

Darlene's given you the ALS forum link, & I hope by now you've spent some time there, asked questions, found some kindred souls. you've found a great place of information & support for your brother-in-law--& for yourself.

Keep coming back. Keep asking questions.