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Old 07-17-2011, 06:51 PM
littleflower70 littleflower70 is offline
New Member
 
Join Date: Jul 2011
Posts: 2
10 yr Member
littleflower70 littleflower70 is offline
New Member
 
Join Date: Jul 2011
Posts: 2
10 yr Member
Default Periventricular lesion, prominent virchow robins space, falls, abnormal ENG test

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Hi everyone
I'm new here and currently undergoing tests and being evaluated for early MS. Any advice would help. My first odd thing was double vision in left eye, eye dr (whom did nothing really except minimize) said he saw inflammation and eyes were bone dry. Then I had 2 falls in work (legs felt like they gave out). Finally got to nuerologist, they did MRI. Also, I have a autoimmune disease called undifferentiated connective tissue disease.

Showed 6mm periventricular lesion & prominent virchow robin space. Nuero said looks early MS and did a ENG on my eye and my left eye is not following correctly and said looks to be from central nervous issues. She then said next step is lumbar puncutre. Showed elevated IGg no O bands...

Back for the follow up and she backtracked on everything!!! Said she looked at my MRI and not indicating MS?????? Said all could be from autoimmune disease, talk to Rheumatologist... said I don't understand ? She said to track symptoms on calendar for several months come back. I also showed her pictures of my eyes which showed that they were both severely red, dry and inflammed, said this is uveitis and again talk to rheumatologist (i just wake up to them being like this overnight!!!). Stupified and upset i left because I felt like once again I am in diagnosis limbo and no answers and not enough help. Meanwhile I'm getting worse.

The other odd thing is I never brought her my MRI and after I left the office I thought when did she look at my MRI as I never brought her the CD.

I made an appt with another neuro and have a follow up with a neuro opthamologist. It seems to me that this is separate from my connective tissue disease. Now I am getting numbness in my left arm and leg and just feel week and exhausted all the time. Seems to have gotten worse with this awful weather.

Anyway, sorry for how long but has anyone experience any of this, does this sound indicated of MS? I can't find any instances of falls, the eye moving incorrectly and the spot the lesion is located to correlate with lupus or sjogren's or connective tissue disease.

Thanks so much
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"Thanks for this!" says:
dmplaura (07-17-2011), NurseNancy (07-22-2011), SallyC (07-17-2011)