I have a question for those with TOS experience. I am newly diagnosed with TOS and am a little concerned about the type that I (may or may not) have. I have been on an exhausting road to a diagnosis with MRIs, physical therapy, and 1 million other things. It is seemingly agreed upon that I have TOS however my main complaint and my first symptom was cold hands and fingers while working.

Not just the sensation of cold, but physically cold to the touch. However, there is no discoloration and my hands are not turning white. Seems to affect primarily 4th and 5th finger on both hands. This has since evolved into more traditional symptoms that many of you describe. But I still get cold hands and fingers while working. No real other time except when maybe lifting something relatively heavy.

My concern and question is whether or not this is ATOS? my PT Dr. thinks that it could just be a neurological symptom and damaged nerves could be the culprit. I also get weird sweating in my hands and fingers for no apparent reason which seem to support the theory of weird things going on.

Wondering if I should be concerned? Would like to avoid any surgery for obvious reasons. But obviously don't want to roll the dice or take unnecessary gambles with something that could be far more serious.

Does anyone else get this as part of their symptoms? Should I look into getting any other tests? If so, who would I see? I assume, that having ATOS almost always means a rib resection?