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Old 07-18-2011, 08:38 PM
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tysondouglass tysondouglass is offline
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Join Date: Oct 2009
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tysondouglass tysondouglass is offline
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tysondouglass's Avatar
 
Join Date: Oct 2009
Posts: 474
10 yr Member
Default Need your guys' opinion

I recently got an email from Northwestern Hospital in Chicago. A few months back I applied for the stem cell immunotherapy trial they are doing there under Dr. Burt.

At that time they said they did not want me for the trial because of being sero-negative... though they emailed me back wondering if I was still interested in doing the trial- which i truly am.

I just dont want them to thing i am super weak and that my MG is taking over my life right now (as it was before). Only because I feel like thats the olnly reason I should be getting this intense treatment done...or should I still do it even though I feel alrite MG wise?

The only reason I feel good MG wise is from IVIG monthly, imuran, and prednisone...and still with that i get weak at times. So i just want to verify with you all that It wouldnt be a selfish thing to do, to consider this trial...
I would love to be without medicines, and feel great. College would be an actual college experience....cool..


Id have to quit work...but i think it owuld be worth it.

Please give your input, i plan on sending my medical records very soon.
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