Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Tyson, This is completely your choice. I'm just going to think out loud here.
There are people with cancer who go into remission after bone marrow transplants but they always have to be followed in case the cancer reappears. It would be the same for MG. Yeah, it would be great if the stem cell treatment could "cure" MG but it doesn't. Remission would be awesome - who doesn't want that. And you may have a good chance of it. But you still could not "push" yourself if you went into remission. You would never be normal. Is that too harsh of a reality?
You really need to write down all of the pros and cons down. Are you such a big infection risk that this procedure would put you up for a sepsis risk? Maybe you should consult with an infectious disease doctor about this too or a hematologist because they deal with these risks all the time.
I'm probably not saying anything you haven't already thought of. But, please, don't be a guinea pig if the risks are too high. I know this disease stinks but there are some very real and serious risks involved here.
Good luck with making this decision.
Annie
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