Yes I have the same problem. I am on Mestinon, Imuran and IVIG. I have lost 30 pounds since Dec and my primary care Dr and Gastro has done several tests but all were negative. I just try to eat as much as I can. I have good days and bad days. I tried the Ensure products but they taste really nasty. The things I can eat are salty, sweet or bland foods such as steamed veggies or fruit.
Mike