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Old 07-19-2011, 02:57 PM
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tysondouglass tysondouglass is offline
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Join Date: Oct 2009
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15 yr Member
tysondouglass tysondouglass is offline
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tysondouglass's Avatar
 
Join Date: Oct 2009
Posts: 474
15 yr Member
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Thanks for all your guys' responses.

First off- Sue, yes it is a tough one:0 Thats how im thinking of it...only because of the medicines im on, am i doing ok..and its not like I am symptom free, its hard to type right now, but its because i have worked all day. I know this is a big deal, but if I have decided to atleast apply for the trial with all my medical records, and see if they even accept me.


Annie- I know, it is very extreme but at this point I know i will be on IVIG for the rest of my life or until remission. Im okay with that, but if I have the ability to change it with this trial, i am going to. Im not doing it to just be a guinea pig but hey im otherwise healthy and they could use someone like me for the trial i believe.

4eyes- I think thats what is going to happen. I am not severe enough, but that is due to IVIG- if i went off that, or pred, or imuran, i would be in a very bad state. He already amended the protocol for me, and asked the FDA to approve a change in the trial..i think he wants me to come.

Thank you very much for your support!
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