Basically the cancer is ruled out. I've been worked up by my oncologist and lots of other tests point away from it. I am a 2 time cancer suvivor and have been vigilent in my follow up care. Oddly, cancer is not a frightening diagnosis for me. I faced cancer like a champ. With the neuro problems, my biggest fear initially was MND, specifically THE big one, but that is no longer a contender, tho' legally she says she cannot say 100% absolutely not. The very slightest of suggestion of that big one devastated me beyond my ability to cope. The neuro-muscular doc is running all tests that exist in the universe because...she can and it is a teaching hospital. I am very happy to have idiopathic, believe me.

I am hoping the insurance will cover me for the 2 dose trial of IVIG. I do not know how I will feel if it does not work. I do so want to stop the progression.