Most of us here have been down that road of w-a-i-t-i-n-g (& sometimes it seems unending) for an answer. I am so glad you found this place, because you can at least take some comfort from those with experience--& who made it thru to the other side.
Other wiser folks will be stopping by here soon. Without a diagnosis I don't want to suggest any forums, but they might know which would be appropriate or have some thoughts of what to do in the meantime. There is a
search tab above just right of center on the blue bar near the top. You could search for your symptoms & read generally, also check out some of the amazing newsbots available.
Keep coming back, let us know what's going on--both with your diagnosis &
just as importantly with your feelings.