Can you see a rheumatologist? I am not familiar with Lupus but I was in the pain day program at the Cleveland Clinic with a man who had Lupus and don't recall a rash on his face. I am not saying you have this just a thought I had.
I have mixed feelings on my care at Cleveland Clinic. In the mean time though could you ask to see a pain management/anestesolgist? Hope you get some answers and feel better