Because in a way, it is almost as if the "old you" has died, and now you have to learn to adjust to life without that "person" in it.

We went through the same thing when our youngest was born with Down syndrome - it was as if the baby we'd been expecting "died" the moment we heard those 2 words, and we had to readjust our expectations in that instant. The baby was still there, but she was a "different" baby, if that makes any sense.

As time went on, we got more used to our "new normal", but we had to allow ourselves to grieve for the loss of what we had expected. As time went on, we learned to adjust, and before long we were just going with the flow.

That's the way I look at the MG journey - it takes a while to work through the grief process, but at some point it just becomes your new "normal". You can fight it, but it isn't going to go away.

Every once in a while, I sit myself down and have a good old-fashioned pity party - I think we all have to rage against the hand that nature has dealt us from time to time, but we can't let it consume us.

And you'd be surprised at what your family members are able to do if they don't have you to fall back on - time to let them step up to the plate and learn what they are capable of doing without you there to do it for them.

It's hard, I know - but really, it's not as if we have a choice. Our bodies are going to do what they will, and we HAVE to listen to our body when it tells us to slow down/stop. The alternative means that your family WILL NOT have you around.....