I know what you are going through. Like you, I have RSD in my hand all the way up past my elbow. I had a spinal cord stimulator implanted in March and it has really done wonders for me but the fact is, RSD is still there. I go through phases where I just keep thinking this is an injury and it will heal but then I realize this is not going to go away. I just can't seem to grasp the reality that there is no cure. I can't believe this has happened, what is my future? So many uncertainties. Family DOES NOT UNDERSTAND.I just want my life back. This has been a long, painful 2 1/2 yrs and I can't seem to grasp this could be forever..
Right now I am fighting with tendonitis in my other hand, hoping the RSD doesn't spread there. It has already spread to my pointer finger of the good hand because I cut myself 2mos. ago, Compound cream keeps that at bay but for how long. I guess I'm just scrared of the future.
patty
Quote:
Originally Posted by Uncertain
Hi! I am a newly diagnosed CRPS patient and I am having trouble understanding how to "live with this". I continue to think there is a surgical cure or another injection for the area I felt I injured. The original pain is still there, but the pain has spread throughout my hand, wrist and upper arm. I don't want to accept that this is CRPS. I feel that if the original area was fixed, then the rest of the pain would magically go away. How do you get past this thought process? How do you live with the flare ups? Nothing helps during the prolonged intense pain. Then it goes away for a period of time, fooling me into thinking that I am cured and then hits again. Of course this continued discussion over and over has finally frustrated my pain DR. He is very patient and kind, so to frustrate him, is a big deal. What do I do?
This is a lonely place to be so I am glad to have a place to ask questions, begin the dealing process, and hope to help others when I reach the coping stage.
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