I can completely relate to how you feel. I developed RSD/CRPS after a shoulder surgery in April 2010. It took about five months of horrid pain and pleading for them to cut my arm off before I was diagnosed. In the past fifteen months its spread from my shoulder to my entire left arm, neck, back of my head, and back. I was convinced that it wouldn't spread from my shoulder, since that was the original injury, silly me. Since then I've undergone every avail. treatment, and am going to continue by pursuing the ketamine infusion therapy next.
For me, the most useful piece of advice I received early on in my diagnosis was that my family and I needed to mourn the life that we had once dreamed of. This chronic life long diagnosis was equivalent to a death in the family, the death of our dreams. Although we will never stop fighting and will always hope for a cure, dealing with the grief has helped in dealing with the acceptance.
Also, seeing a therapist is a tremendous help. Although it doesn't provide the same benefit as venting on these forums where people understand your pain, a therapist can help provide you with the tools to cope with the pain.
You are definitely on the right track by just coming here and posting. Ask questions, knowledge is key. Some of the medical field has a great misunderstanding of this disease, its important that you understand all aspects possible, as to not make it worse.
I wish you the best of luck.