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Originally Posted by Uncertain
Thank you for the information and the support. I will use some of these ideas in the link. I appreciate the information. There are no support groups in our state. I do have a great pain Dr. that not only treats CRPS, but is genuinely interested in helping his patients. I think I am the problem, because I tend to want to fix things right now rather than accept the fact that there is no cure and I have to deal with that.
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I felt the same way as you early in this and of course now I wish I could fix this or someone would fix me. During the first year of this I had a few doctors even say to me you are looking for a doctor to fix you. I thought of course I am who would not. I even remember my neurologist saying you are going to have to learn to live with this. I was like no way, how can I and I was so mad at her.
Then as time passed and along the years you get to a point after seeing so many doctors that you realize you have to manage this and find a treatment to give you pain control. It can get too a better place pain wise where you can have a better quality of life and less pain. I know this girl who had rsd for many years and was in a wheel chair. She did so many treatments and suffered so much. Then finally she found the right treatment for her and she is active now out of the wheel chair,back in school etc. So I guess you never know what can help.
Like others said you are not alone.