Hi, Susan...sorry no one's been along yet that's familiar with arachnoidtis. Here are a couple of forums where you might find some help:
http://neurotalk.psychcentral.com/forum22.html

http://neurotalk.psychcentral.com/forum21.html

You also might try typing that into the search feature here, checking either threads or individual posts.

Anyway, welcome to the community and I hope someone will notice your post soon and have something to share!