Originally Posted by ThirtyishHydroGuy

I had my shunt places when I was seven years old, and never had it revised until I was 32, but it's always made me a bit ill and suffer from headached. I have somewhat of this issue I think you're talking about... but a bit different. They supposedly put the shunt in with the same length catheter into everyone, so even if you're an adult who will no longer be growing you have the distal end of the catheter (which you would think would be handing in your belly) actually going down further into your pelvic. I started having some crazy testicular pain as well as just general pain down there. The doc sent me to every specialist for man troubles you could think of, nothing was found. It also seems there is not a consisten agreement amongst doctors. My neuro surg here in WA said it's because the distal end of the catheter is hitting nerves down there, but would not recommend surgery because it can open me up to infection, and I had an awful infection in 2009 after the revision of the shunt, with three more surgeries and another month in the hospital where I almost died... so not wantign to go that route again. But this pain, it can make it hard to walk, it can make it hard to sit still. If you're interested I can look online for you for the study that was found of the issue.... it supposedly only happens to two percecnt of all of us shunted people.