My accessory nerve was damaged as a child as a complication from a Tortecollis surgery. However, the symptoms did not reveal themselves until 30 years later. I now have a Trapezius muscle that has atrophied, died and was reabsorbed by my body within 6 months of onset. Drs cant explain it. Scapular winging and pain that just doesnt seem to quit. I have been waiting 3 months to see the only dr in our area with any expertise with this surgery. I too have been advised this is my big fix. And our last resort. I am quite dismayed that with the power of the internet there is not more information regarding this surgery. And the outcome.

I did find an article. But because I am new to this forum, it will not allow me to post it. And again, there is no one to talk to who has actually gone through it.

Sending you happy thoughts,
Myst