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Senior Member
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Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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Senior Member
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
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welcome recognition
Wow !! great article - very cool that MJFF and PAN are cited as examples of patient-involved innovation.
I really like the message in the final paragraph; makes me happy that we've continued to speak up all these years:
"Clearly, it is unacceptable that these insights gather dust while people wait for treatments. The thought that the mechanism underlying their diseases is known but nothing is being done to act on this understanding will continue to energise patients’ groups, providing inspiration and a spur for innovation".
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Carey
“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
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