Thanks Annie. All good points. He is "stable" at the moment. We haven't gotten any results back..no biopsy results and no genetics results yet, so we're still in limbo. With school starting in less than a month, we have to make plans assuming that this is where we will be and what we know....until something changes...and as you point out, it will change.

We tried to start him up on the Mestinon again. I gave him only one 15 mg dose, and within 5 hours it had upset his stomach and he spent the next twelve in close proximity to the bathroom. It wasn't horrible, like before, but it was only one 15 mg dose. The docs at UC Davis changed their recommendations and now suggest that he not try any meds until we get back test results, and if Mestinon is appropriate at that time, they will proceed addressing the GI issues concurrently.

For now, the plan is to go back with a very "light" schedule that is not academically challenging, but will allow him to make progress with credits. Fortunately, my son is very smart, mellow and is great at putting things into perspective, so I hope that will help him manage his stress levels.

Thanks again for all the good advice.