They don't have a clue yet. They don't even know whether its sernegative MG or CMS yet, but he definitely could have too much acetylcholine. He has only done two "trials". The first was in the hospital when he couldn't move his legs at all, but he was having stomach problems even BEFORE the Mestinon, so that did not go well, although he was able to move his legs after the first dose or so, so it seemed to work, but that may have been coincidence. He only took one tiny dose with this second trial. Neither one is enough to really give us an answer either way.

Since all this started he has been off all drugs, other than what has been given to him in the hospital, so that isn't a clue either.

I just keep waiting for test results to tell us SOMETHING....ANYTHING.

He was on home hospital last timester, but he is a very social person, and has a lot of friends, so he may be one of the very few teenagers in American who want to go school.