Thread: IVIG treatments
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Old 07-27-2011, 11:39 PM
Gabriella7 Gabriella7 is offline
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Join Date: Mar 2011
Location: The South
Posts: 27
10 yr Member
Gabriella7 Gabriella7 is offline
Junior Member
 
Join Date: Mar 2011
Location: The South
Posts: 27
10 yr Member
Default Ivig

I have had multiple sclerosis for over 30 years now. About a year ago my neuro wanted me to have IVIG but the insurance would not pay for it since it is not an approved treatment for MS.

In April, I was in the hospital for what I thought was an exacerbation of MS but my new neuro ordered some tests which showed I now have myasthenia gravis and IVIG is approved for it.

I had a 5 day course of IVIG in June, a 3 day course in July, and will have another 3 day course in August. I got the first statement for the 5 day course and it was $65,000. I hope and pray my insurances will cover the cost. I don't know if it is working or not as I also take Mestinon every day for the MG.

It has been so hot this summer I can't get out and have been only out for dinner. I have read it sometimes takes up to 12 weeks to know if it is working or not.

Gabriella
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