Hey Jewells

Thanks so much!!! I think (?!?) I replied to your PM!? Your son's response is inspirational - thanks for sharing - it is one of the reasons I so want to do it! It's just... RSD and surgery... as ever.

I am almost certain that I am going to go for it if the surgeon and anethitist agree. I saw my rheumatology consultant earlier who said that I will never get any better than what I am now, so what have I got to lose? My dr said to go for it, there isn't much worse I can get, so it's worth a go.

I also have full body dystonia which is not very controlled (botox 3 monthly - 5 units or whatever, benzhexol 36mg, baclofen - up to 110mg, diazipam up to 20mg and that's just for ths spasms!). Therefore they feel I'd probaly need new batteries reguarly - it might be that I'm getting a different stim?

Thanks again!!!

Rosie xxxxxxxxxxxxxxxxxxxxxxxx