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Originally Posted by Granacki
Greetings all
I tried posting this under New member introductions and no one else with this condition responded so I'm posting it again here. I'm new and still a little murky on how to post things.
I've been diagnosed with anti MAG neuropathy, an auto-immune variant with no known effective treatments. I never hear anyone else claim to have this seemingly uncommon type and very little is written specifically about it in the usual books. (Latov, Sennett, etc.). Luckily it is described as "very little progression over many years." Does anyone out there have any experience with this and is able to tell me what "little progression" has meant for them over many years? I've had it almost three years now (diagnosis just a few months ago at age 59) and so far, it's disturbing but bearable. I have burning, tingling and numbness in my feet but no weakness yet, no balance problems, and no shooting type pains. I've cut down on walking and standing but can bike as well as ever and can still walk 9 holes by taking it easy and recovering the next day. I read about so many other really disabling types of neuropathy that I wonder if that's in my future too. Any other anti-MAG folks out there?
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Could be what I've had for 10 years, progressing the past 2 years. I'm 64 and it struck me when I was 55. Up until 2 years ago, I had tingling and numbness but no pain, no balance problems but my legs became easily fatigued. That became worse, now balance issues and muscle weakness. I've had no real diagnosis, had MRIs, EMGs, diagnosed with mild neuropathy but can't find cause or identify it exactly. I live in a small town and so should go to the City to specialist for right diagnosis. But I've done well after getting on plant base diet, reducing my sugar intake (even tho not diabetic), reducing alcohol to occasional glass of wine. And, I take the supplements that Mrs. D. recommends and exercise constantly. Just added a new supplement, Tumeric (in curry). I've seen a difference. Keep up the exercise that you're doing but watch very closely what you put in your mouth.