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Originally Posted by Susanne C.
I am interested in this as well. I have been a stay at home homeschooling mom for 27 years, am returning to work teaching high school English this fall. I only have a 5 minute drive, which is great, as I find that I cannot drive for more than 20 minutes or so without increasing pain levels throughout the day.
I have "moderate to severe" progressive neuropathy, both small and large fiber, sensory-motor, probably CMT. Skin punch showed no discernable nerve fibers at ankle, few above knee, and segmented and breaking down at thigh, so I am pretty far along with no treatment other than pain relief. I have been to Johns Hopkins for full eval and the neurologists agreed with my decision not to pursue further testing. I am pretty strong with a high pain threshold, so I get along all right, but I do get so tired and when the pain interferes with my life too much I take Oxycodone. But I will not drive when I take it, so I am wondering if teaching will be too much for me, without taking pain meds. I am on 1800 mg gabapentin, which helps with the burning and zaps but not the leg pain. My hands and arms are affected as well, writing on the board will be tough and my handwriting has seen better days.
What are your symptoms like, Danielle?
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Susanne, my symptoms started about 2 and a half months ago. I have had tingling through out my whole body. Right now I mostly have slight burning in my feet with some aching pain if I walk too much. I feel prickles all over sometimes and some small muscle twitches too. It has happened very fast. I feel it is due to my back. I had extreme muscle spasms in my back right before this happened. I was on vacation doing some sight seeing and walked too much I guess. I also take 1800 mgs of gabapentin each day! I have 2 children who are in elementary school. I carry the insurance for the family. It is all so scary. Thanks for your sharing. It makes me feel like I am not alone! Danielle