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Old 03-12-2007, 08:46 PM
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johannakat johannakat is offline
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Join Date: Oct 2006
Location: Los Angeles, CA
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johannakat johannakat is offline
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johannakat's Avatar
 
Join Date: Oct 2006
Location: Los Angeles, CA
Posts: 894
15 yr Member
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I' m a little confused as to how this all works. Once you have TOS and you get treated for it (nerve blocks and therapy) does it go away and "stay away" or is is always going to be an issue? Also, how long is therapy usually needed to treat a severe case? I found some info that has me thinking that once you have TOS ..it never really goes away...but it's manageable. Is that right? I'm just trying to look at what might be ahead. Am I going to have to learn to do things differently, will I be able to get on my bike and ride for an afternoon again? Will I be able to hold a job sitting at a computer all day. At the moment...it doesn't look promising...i can't do any of those things. I'm just wondering if thing do change for the better.
in a word, yes. It never really goes away. You and your doctor strive to make the symptoms manageable. My doctor told me that my long term goal was to be on the computer 2hrs or less per day......... forever....Good thing my husband was there to hear it straight from the doctor's mouth.

I spent a lot of days crying as I digested that, I was only 33 for cryin' out loud. Didn't expect to be permenantly damaged quite that early.

After a year of PT, botox, and life modifications, I am giving up and going for surgery, just hoping to regain the ability to get through an occaisional day without the help of vicodin.


With a little luck, you'll be back on your bike, or at least walking. All day computer job? well, that's a recipe for disaster unless you have some really good voice software. Many people here, myself included, use Dragon NaturallySpeaking. It is very helpful if you have a decent computer to run it on. Look on ebay for good deals.

Relieveing the nerve compression either by PT, surgery, or injection will help your arm strength and clumsiness...shopping is still something I do pretty well

I know that isn't what you really wanted to hear....none of us did.
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