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Member
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Join Date: Apr 2008
Posts: 900
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Member
Join Date: Apr 2008
Posts: 900
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Legzzalot: I'm not sure why your doctor won't let you go every 6-8 weeks. I had 4 very bad UTIs 4 months in a row. The 2 weeks of antibiotics also made feel like crap each time. So my doctor suggested going every 8 weeks. It worked like a charm--no UTIs. Apparently, I'm not the only one in my big MS clinic. I was told others with infection problems went for 8 weeks and their infections went away. I would ask your doctor to confer with other MS specialists. Be aggressive about your request. Try for 6 weeks. Tell the neuro you won't take no for an answer. It's your body!
Linda, I was going crazy by the end, especially since my infusion rate is much slower than normal. It takes about 2 1/2 hours for the Tysabri and then the saline. Throw in almost 2 hours in the waiting room, plus putting in the IV etc. and I was there forever. So irritating. Luckily I had my laptop with me!
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On Tysabri and love it. .
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