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Originally Posted by kittycapucine1974
Thank you so much, Cindi! Your kind words really touched my heart!
My RSD, which was causing SMP (Sympathetically Maintained Pain) is now causing SIP (Sympathetically Independent Pain). This is the reason why my anesthesiologist said my pain had "centralized". According to him, I now also have Central Pain Syndrome! One more chronic pain condition to deal with, added to my RSD, osteoarthritis, etc.
I hope your RSD pain will never centralize! It is already not fun having RSD and its pain in an extremity; if the pain has to be in the spinal cord, in the brainstem, and in the brain because the pain became centralized, it is worse because, from there, it could spread anywhere in the body! My anesthesiologist finally admitted the truth to me because I prefer the truth, even if it is bad, than lies or hidden truths!
Thanks again for your kindness, Cindi! You made my day!  |
You are very welcome! I love it here..it's the only place that understands me. My RSD has spread to my right arm and now into my right leg. My first neurologist told me never go looking on the internet about RSD or it will get worse...it was worse before I even saw him or got on the web to look for anything.I was having crazy symptoms and if I hadn't found this board, I'd be in the loony bin with depression or worse! I love everyone here and if you haven't been greeted by our sweet Ali you soon will be. She is our little ray of sunshine from the UK and has helped me so, so much. I haven't seen her a lot lately so she must be in a bad way. You will get to know these great people as time goes on...Mike,Pete, Jim, Sandy, Loretta, Peppermint Patty, ect.... they certainly know their way around this crazy RSD ( I didn't mean to leave anyone out, so please add yourselves!!!)