Thread: Myoclonus
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Old 07-30-2011, 12:40 PM
tonijo tonijo is offline
Junior Member
 
Join Date: Nov 2007
Posts: 8
15 yr Member
tonijo tonijo is offline
Junior Member
 
Join Date: Nov 2007
Posts: 8
15 yr Member
Question I have been dxed with multi focal myoclonus 6yrs or so

Quote:
Originally Posted by Buttons View Post
Well Craig I understand how desperate she is (and you!) for some actual RELIEF!

I'd do alot of research if I were you. Botox is very expensive isn't it?? I know they are finding alof of uses for it other than wrinkles!

Perhaps you could find a good discussion forum on Botox?? Where real people have had the injections?

Who is financing this? The manufacturers of Botox??

Has your wife had NO improvement at all? I'm sure I've espounded on the benefits of magnesium & B12,etc. Has she ever been given injections of either?

I'm sorry she is still suffering, as for myself-I rarely have any jerks anymore & it HAS to be cause of the vits/etc I take cause I've never used any meds for it. I might be an alcoholic now however, I drink wine every night-if not I will start the jerking!

In my experience VERY few doctor's even know what the heck myoclonus is!

I have developed the jerks UNDER my lower eye lids, I assume this is yet another weird Lyme symptom,it comes & goes. (Of course it wasn't happening when I recently went to yet another eye doc!)

I've given up on doctors!

Take care,Buttons

P.S. The old BT is up & running....perhaps see you there?
I an tonijo and could use some advice my myoclonus is multifocal and through the yrs gotten diff symptoms like the newest one is spasams in my back feels like its pulling on my spine and the pain oh my god is unbarable the doc just treat me with norco for pain I just take soma for muscle relaxer it was best for me to function, nero wants me to take zanaflex but I cant function 2x a day all I do is sleep.I want to treatthe cuase but dont know if this is posible .I have soft palit tremore s at rest and intental I fall all the time no balance I drop things bad pain in legs and now BACK Ican,feal balls of muscle and they hurt so bad I dont know where to go from here and now to top it all off my doc of 11 yrs retires and new doc dosent want to handle my pain so I am going to pain management she gave metill I see pain management for norco dose .tremors always present but back has me scared any help would be great thank you sorry if I posted this wroung
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