A video blog would be great for people to actually witness what RSD can do to destroy you. I have started a blog to help educate, and a place to express myself, and it's been amazing. It has helped to educate our family members and friends in a way that we could never explain. I try to post daily. My husband recently said I was sounding too positive That I wasn't getting the point across what the true nature of the beast does to us. I hope to post tomorrow, for him, and describe a day in the life of RSD.
My doctor didn't believe in the spread, and as mine had developed after a shoulder surgery I was CONVINCED that it would never leave the shoulder. I did make the choice to have a SCS implanted which seems to be what caused the RSD to move to other areas more related to my spinal cord. Sometimes you just can win with RSD.