Paul,
I'm sorry you're going through this.
There is a thing that many of us call the Triangle of Care.

First,
Your doctor, your meds.
You deserve a measure of pain relief, sleep and nutrition!
Learn, and be advised about these things
Be sure you have found a doctor, usually a neuro, who is well versed in treating rsd. (a difficult task in itself). Otherwise, you become a test dummy.
(been there).

Second.
Exercise, this is a Use it or Lose it disease! While strengthening exercises aren't recomended, you need to keep moving! Walks are great, warm pools are better, but don't just sit or lay down all day, unless it's positively necessary!

Third.
Your mind.
A Psychiatrist, that deals with chronic pain, is mandatory, especially in the early years. Most of us here are beyond fooling ourselves into thinking we can just 'handle it'. We can't.
Nobody is intended to be a 'miracle person'. So, get this help, find a good psych, (your doctors recommendation should help), and if you like that doc, stick to it. You'll learn an incredible amount with the right one! I cannot say this enough!


I also suggest you visit the

rsdsa.org

There are numerous RSD groups on Facebook.

And, a place called 'neurotalk', remarkably similar to this place! (joke). Great group of people there, that will always be ready to help. They practically saved my life once!

btw, I've had rsd/tos for 28 years now.

PM me if you wish, I check in a few times a week. I wish you the best!

Pete
asb