I'm glad you've come here. I'm going to suggest you go from here over to the Forum for Spinal Disorders & Back Pain:
http://neurotalk.psychcentral.com/forum22.html
If you don't find a thread that seems to include your situation, then introduce yourself & your condition as you have here. I think you can start your own thread.
I'm fairly new here myself, so I'm still learning some of the ropes. It's a great place for information-gathering. Ask questions, & keep asking them. Grab a virtual hug or two when needed (we all need those), & just generally ask for what you need. Really amazing people hang out here.