Fibro I know is completely different...
I know people who have RSD who ALSO have Fibro.... for instance, they get ketamine, and it helps the RSD but not the Fibro... My doctor thinks I might have fibro also because my RSD pain is under control I still have a pain that is fibro similar and my rsd doctor cant explain it...
I wish RSD was a precursor to RSD because researchers KNOW so much more about fibro than RSD. I have asked many doctors about this, and they have all replied that ours affects our brain is different.
Also, I wish it was the same because Fibro doesnt make our limbs curl in, arms turn purple, shiney, nails brittle... etc...
I often have wondered... and find out that ALOT of people that RSD tend to get other autoimmune diseases or some other type of disease. They say that our immune system isnt reduced... but since our brain is kinda in a sense "wacked" are we more susceptible to get other things???
I do think that people get diagnosed with RSD that might have fibro and people that have fibro get diagnosed with RSD... being that there are NO tests for either of them..
But I think the biggest thing with RSD is the physical changes of our body when it is out of control. Now that I have had my ketamines, I have gone through pt, I have eliminated ALOT of the color changes, curling, by my constant treatment of ketamine infusions, exercise, textures, etc all that fun stuff.
I know people with fibro, and us with RSD, are in a HELL of alot more pain. We have weird crazy things that affect us that dont affect people with fibro. (my aunt has fibro).
*** I am in NO NO way putting anyone down in pain with fibro. Please dont get that from me, I just know that it is 2 different things, and I have researched alot, and talked to alot of people and compared symtoms, scenerios they can and cant handle, and by far RSD is worse
Having so much time to spend in bed, this has been something that I have wanted to know for over 2 years now but just never posted on so I am greatful that you did! From the information that I have gotten from people with both... They are different... But have a few similar symptoms... but the way a person describes their pain with fibro/ to the way they describe RSD...is different as well. Similar but, RSD tends to be WAY more extreme.
I hope I made a little bit of sense....
Do you notice differnet pains with fibro and RSD? OR do you just have RSD or do you have both?
This is totally interesting to me..!
Hannah