Once a TOS'er always a TOS'er hun. However I have read on here that alot f people are finding ways to manage it. I am 6 weeks post op right now, but had alot of complications after suregry so I don't know how much the surgery has helped yet. I ended up with my chest full of fluid so they had to put a chest tube in to drain it.The chest tube site has actually caused me more trouble than the surgery site. Im just getting over pneumonia also and I ruptured another disc in my back and am just getting back on my feet from that lol. When it rains it pours!! Even through all of this I do believe the surgery has helped.I havent had a headache since 2 weeks post op.The strength, I dont know yet if that has been helped because I am still weak from the other complications. I know it's very hard to go through things when we feel we are too young to have such problems. I started with severe fibromyalgia as a teen, graduated to bladder cancer at 27, Tos set in around the same time as the cancer,hysterectomy at 31, hyper active muscles so they rip very easy, 2 knee surgeries, rotaor cuff repair,bowel surgery and the list goes on lol.......raised 2 boys during all this....I guess my point is you keep putting one foot in front of the other each and every day. You learn to adapt to what you can and cant do. It took me a long time to stop saying,
'I used to be able to do this or that" and instead put the past behind me and start new every day. Everyone finds there own way to cope, this site is invaluable as are the people here! You will find so much help here where people are going thru the same things you are. Try to keep your chin up hun.Take one day at a time ,don't over do it, and learn to listen to your body.For myself, I couldn't have gotten this far without God! He is my rock and the people here are angels in disguise waiting to help!!! You will be in my prayers, cindy