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Old 08-01-2011, 10:12 PM
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LizaJane LizaJane is offline
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
Member
LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
Default Keep going

Even with negative tests, keep them treating you. This is lyme until somebody finds some better diagnosis which responds to treatment as well as you respond to antibiotics. I was sick for 15 years before I was diagnosed. It took one year of antibiotics, but I am better, and I am living a full life. I'd forgotten what that looked like.

I suggest the lymenet.org board to find a lyme literate doctor near you, if you are having problems. And in the US, bloods sent to a lab specializing in tick borne disease. And don't forget they must test for those co-infections...

Just advocate for yourself...you're on the right track.
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LizaJane


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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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