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Member
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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Member
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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Keep going
Even with negative tests, keep them treating you. This is lyme until somebody finds some better diagnosis which responds to treatment as well as you respond to antibiotics. I was sick for 15 years before I was diagnosed. It took one year of antibiotics, but I am better, and I am living a full life. I'd forgotten what that looked like.
I suggest the lymenet.org board to find a lyme literate doctor near you, if you are having problems. And in the US, bloods sent to a lab specializing in tick borne disease. And don't forget they must test for those co-infections...
Just advocate for yourself...you're on the right track.
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LizaJane
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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