Hi Ballerina,
As far as I know, the plan is just to continue what I've been doing. I suppose at some point if I stay in remission we can space the boosters further apart but that's something I still need to discuss with my doctor.

I was just talking with a friend about getting a port. She's getting one soon and I'm realizing I really do need to do it. It's getting harder each time to do a blood draw or get an IV in, they all just roll back or there's too much scar tissue, etc. I wind up feeling awful for the nurses because they're afraid they're torturing which is kind of funny. The prick I consider a welcome pain since it usually means ketamine or a pain reliever is coming.

My doctor started off with Dr. Shwartzman's protocol and still bases his for the most part on it but he's a bit more flexible in that he tailors it more to the individual patient and what works best for them. For me, that's turned out to be a higher dose of ketamine and more frequent treatments, for now.

So far, Aetna has not paid for any of my infusions. They did cover the hospital bill when I was inpatient for 5 days but they won't pay the doctor's fees.

I'm happy to share my story and answer any questions anyone ever has. The relief ketamine gave me really was a lifesaver and I always hope that at least one other person I talk with will try it and have the success I had. I also wish for the few dollars ketamine itself costs, the medical community could somehow make it more affordable for everyone.