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Originally Posted by Hanna1
JudeLauren, it is interesting what you said about the pain after the physio. The problem is that you usually do not have enough time to relax after the treatment because the next patient is waiting. But I'll tell her tomorrow about that.
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Perhaps you could find somewhere close to lie down--an unused phisio's couch, or even bring a sleeping bag & find a quiet corner. As a last resort, simply move to a chair & remain quiet. If you move slowly, you can maintain the
energy state of the muscles. Try also to keep your mind quiet.
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For me, at the moment, the most terrible thing is the mental picture in my hand that I will never ever be able to move and behave like a healthy 50-year old woman. This totally knocks me off. I'm sitting here in front of this computer and the pain starts creeping and swelling at my neck and behind my ear and I think that this must be somebody else's nightmare.
Due to the Hashimoto desease I have already pain in all of my muscles and am often tired. I am used to that but the TOS is too much. I hate people who complain all day long about their - not serious - ailments but then I find myself standing in the kitchen and the tears start running down my face. I feel so inadequate as a mother who is always tired and a wife who walks around with an arm hanging around as being paralyzed for fear that the pain comes again when moving normally. I always think that I could damage muscles, the plexus or I don't know what when using the arm and the muscles like a healthy human being.
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When my mom died in 1991, we discovered that my dad was in mid-stage Alzheimer's, just as we'd suspected. Their doctor had lied about the neurologist's findings. I moved back to be with him. A decade later, my cholesterol soared; I started taking large doses of statins & niacin. Within 3 wks, I was reporting arthritis everywhere. It was side effects from the drugs. Soon all my muscles began to feel bruised. Over the years, the statin dose has increased (I'm genetically predisposed for high cholesterol.) So has the pain. The worst of it is that my sleep is interrupted by the pain, waking me every hour & a half or two hours. Over the course of 10 or so hrs, I try to put together 5 to 6 hrs of naps & call it a night's rest.
I'm telling you this loooong saga (sorry) not because my story's the same as yours but because there's a parallel. When my troubles started I was 45, & I mourned my lost future. I was full of fear for all the loss I would encounter.
Okay, now I'm 65, & I missed out on a lot because I was afraid to go for it. I spent too much time mourning what I couldn't do. But I have a best friend who kept dragging me along with her, doing things we'd always done, reminding me of what I
could still do with a little effort, planning--& her help. I've had to accept that, sometimes, I need to ask for help. & that's okay.
So what I want you to know is that neither your present nor your future is sealed. Ask questions,
keep asking questions, till you really understand your condition &
all your options.
And try not to mourn now. Don't assume the battle's over (& lost).
Stop by anytime for hugs, to talk, to get whatever you need.
