Dear Frustrated,
I am sorry to hear that you have been having so much trouble finding help. I had the same situation with trying to find out what to do with my wrist. I have other abnormalities in the wrist and hand that some surgeons said they did not want to fix and one surgeon said he could fix it. After 2 years, I found out I had CRPS and was referred to the UW center for pain relief. I have a wonderful pain Dr. that takes a lot of time listening and searching for a solution. The pain clinic does not like Ketamine because it can be a very dangerous treatment, can cause extreme nausea and vomiting and can cause death from a loss of respiratory drive. This treatment is to be cautiously approached and researched. You need to find the most successful program which I have found to be in Florida, Europe (Holland) and Germany. There are other programs but I am not sure where. Insurance does not cover the treatment because it is experimental.
I am sorry there is no quick fix for this condition. I have been struggling with that myself. I know the more I move the limb and keep it protected from weather changes, the better I feel. I am on several medications to dampen the pain. I can't take the full strength. A tens unit, moist heating pads, Lidocaine patches, Compression glove, a soft splint, exercise, and pain management techniques are a few things that I have been successful with. One hour at a time. Don't look ahead or back. Keep focused on getting to the next pain free hour.
I hope you will find relief soon....... They are great Dr's It just takes time and finding the best fit for you.