Glenn:

I don't think he's ever had this. I have to go and ask his doctor. It would be in his file. I remember YEARS AGO, when he was hospitalized because he took celebrex, and he developed this body rash, his whole body, face, everything blew up, and I took him to the hospital, and they called in the people with the hazmat suits who came into the ER and were examining him and told me "I think he has Rocky Mountain Spotted Fever" and I remember it being 3 a.m. and I'm sitting there saying "Are you people serious? He took a celebrex, this is an allergic reaction, (they still had not given him a bendryl by that time). They put him in isolation (which has it's own air supply).

I remember the doctor coming in and saying "We are going to run every blood test under the sun". Then the tests came back as him having no calcium in his body and the doctor said "Oh my someone goofed on these tests, because if this were his calcium level he would be boneless, I'm going to send his blood work to MY lab up in Hematology. They took more blood and did tests for ANA titers (I remember that one), and every test in the book.

Now this was not for his neuropathy but it was for his rash condition. They finally determined that he was allergic to Celebrex and gave him benadryl and his body went down and his rash dissipated but it took some time.

I remember a janitor coming in and trying to get his garbage pail and the guy was dressed in a hazmat suit and he ran in and ran out, and I said "what the hell are you doing?"

Then one day the doctor came in without wearing any kind of mask and said "we are moving Alan", he's not contagious" and I replied

DUH!!!!

That's when they moved him into the general population.

So I don't think he has had any genetic neuropathy testing.

I also do not know if his insurance covers this. But believe me, his doctor is a WONDER, and if he can get this done, HE'LL GET THIS DONE.

And if he gets the genetic neuropathy testing done, what are they looking for, and what can be done?

And if we had known this 22 years ago (did they even do genetic testing 22 years ago), would the outcome had been any different?

Thanks much Glenn.

We have MUCH to talk about at the next meeting, don't we??

Melody