Thank You, mollymcn and frogga, for replying back to me about this.. I appreciate your help with this. My daughter is only 15 and trying to go to school and deal with this, and it's starting to get to her.... she's a VERY positive person even though she has this, but I think since this is starting to effect her ability to walk, it's getting to her... She also has the burning, sharp, stabbing pain , all over as well... Which really breaks my heart, to see her like this and not sure how to help her..

They have sent her to Cincinnati Children's Hospital several times, now they are talking about sending her elsewhere, since CCH really didn't know how to help her either...

If you'll know of any Drs. on the east coast that deals with this, please let me know..

Once again, thank you both!!!

Kellie