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Old 08-04-2011, 03:40 PM
zygopetalum zygopetalum is offline
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Join Date: Jun 2011
Location: washington state
Posts: 417
10 yr Member
zygopetalum zygopetalum is offline
Member
 
Join Date: Jun 2011
Location: washington state
Posts: 417
10 yr Member
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Echos, how did you lose so much lung function, do you have that genetic form of COPD? Mine is about in the same range, 45%-50%, I was still at the mild stage before surgery, they removed a lobe and then it tore open before healing so I lost more than was expected.
It sounds like you Dr. is more aware that you have other issues of concern than mine is, I suspect I'd have been left on the Singulair without irrefutable proof, and I think the drug companies are a little reluctant to provide that sometiimes. I'd REALLY like to know what they are calling 'paresthesias'. I went off Spiriva for 5 days and my sensations returned to normal, all I had was that burst of neropathic-type pain when I used the Flovent. I'm glad the meds don't seem to be bothering you, a lot of people seem to take them with no ill effects. I actually seem to be breathing better with a lower dose of spiriva, I'm probably just sensitive to it. I was on Advair but had some cardiac issues, again Dr. Weasel (can I say that? lol) didn't consider a lower dose. Its a shock to have more than one life-altering disorder, for me the neuropathy has been worse than cancer. People in this forum live with a lot of hardship.

I'm not ruling out anythiing Glentaj, just started with the meds because I knew they were having an effect. I didn't develop neuropathy until around 3 years after I'd had the cancer, I have wondered if there were some subtle signs I didn't notice. I also took a ton of fluroquinolones (sp) during that time but again didn't notice anything except they made me twitch when I was on them.
I've been wondering if you all are aware of any conditions considered risk factors for neuropathy, one site listed Neurocardiogenic Syncope. No one in my family has ever been tested but I'm sure several of us have it, I used to faint all the time as a kid.
Re: Melody's post, I also had a German grandmother and her mother looked like she should have been wearing a babuska in a Polish villiage...leading a cow.
Zygo
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