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In Remembrance
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Join Date: Aug 2006
Posts: 1,002
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In Remembrance
Join Date: Aug 2006
Posts: 1,002
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dear friend,
what if the impingement is too small for anyone's eye's to see? What if the damage has been building up little by little.
I like this book that helped me feel validated. She ended up with myasthenia gravis.
What if I have neuro R TOS, AND RSD AND diabetes and now things have moved and changed to mysathenia. I know when I went to the hospital last summer for 9 days because I couldn't breathe - THAT was myasthenia and NONE of the doctors in the building knew that.
How utterly ridiculous the lack of knowledge most docs have now, or care.
That book is called "My Imaginary illness" Chloe G.K. Atkins
Lastly, does your PT KNOW proper TOS physical therapy? We have some listed up in our doctor list. It is imperative that if you have "my" type of TOS you do not try to work out, you know, do it til it hurts - that could kill me by paralyzing my breathing or digest things.
I am going to put in an old memo I wrote for any new TOSer. I hope it helps.
God bless us all
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