Thread: Frustration
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Old 08-05-2011, 07:23 AM
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alice md alice md is offline
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alice md alice md is offline
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alice md's Avatar
 
Join Date: Sep 2009
Posts: 884
15 yr Member
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Sounds like a very frustrating situation.

As long as you are receiving prednisone in a near-crisis state, you should be in the hospital. Prednisone can initially make your illness worse and you should be closely monitored. They will also probably want to gradually increase the dose. 20 mg. is a relatively low dose.

On the bright side, if you have a good response to prednisone you can do much better within a few weeks. Some people even experience improvement within the first week.

One of the problems with myasthenia is that there are no clear guidelines as to how patients should be treated or monitored. If you ask six neurologists you will get six different opinions. I believe that this is also why health care plans are not obliged to give any treatment unless it is a clear-cut life or death situation.

Quote:
I was one or two points away for going into the ICU.
Doesn't sound like-
Quote:
None of my respiratory tests are abnormal
It sounds as though they understand the severity of your condition, but probably not doing a good job in explaining what is going on to you. I think you should try and discuss with them what their plan is, what are they expecting and let them know your concerns.
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