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Old 08-05-2011, 01:48 PM
kittycapucine1974
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kittycapucine1974
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Hi, Pete:

Quote: "It's not beer in there is it? (sorry, bad joke)." Just to reassure you, I can swear to you I do not drink, except sometimes some champagne during birthdays, Christmas, and New Year's Eve celebrations. I do not like the French champagne my family buys, because it is not sweet like American champagne.

Quote: "It sounds to me as though you're not getting proper pain relief." I thought I was getting proper pain relief because I usually do not feel much pain on any day of the week. The pain medications I take are:
-Duragesic (fentanyl) 125 mcg: one 100 mcg patch and one 25 mcg patch every 72 hours
-MSIR (morphine sulfate immediate release) 30 mg: one capsule once or twice daily
-Tambocor (flecaïnide extended release) 200 mg: one capsule daily
Sometimes and as needed, I take some Celebrex and some Tylenol.

Quote: "Have you spoken to your doctor about this?" Only my primary care physician is willing to take care of my RSD and its pain by prescribing for me the necessary medications to make this monster pain bearable. The only pain management doctor in my area is unreliable to me: he told me the new type of fentanyl patches, those without a reservoir, can be cut in two, which is not true at all. He would have killed me if I had listened to him. I also did not like his treating me as if my RSD and its pain were in my mind, even though some American Emergency Room doctors, primary care physicians, neurologists, orthopedic surgeons, pain management doctors, and psychiatrists have absolutely no doubt my RSD and its pain are real. I kept the medical records (copies) as proofs of my having RSD and pain.

What kind of doctor or specialist do you think I should speak to? I have no idea who could help me. Even though I am in French Polynesia at the present time, going to the U.S. or Canada or elsewhere is not a problem for me.

Quote: "Any unusual perspiration?" In French Polynesia, where it is often hot, I sometimes perspire, like any person in a hot place. However, perspiration happens rarely.

Quote: "I would venture this guess, that it's not actually your vascular system, it's your sympathetic nerves. Which could mean it's gone full body (it usually does, imho)." I thank you very, very much for telling me the truth; I prefer hearing the truth, even if it is bad news, than hearing lies. I think getting more information on this particular symptom of full body RSD will teach me new things and, in a way, reassure me.

Quote: "My prayers for you getting proper treatment and resolving this issue!" Thank you for your prayer and kind words. You might say I am crazy, but sometimes, I wish I would just die so this syndrome and its pain would permanently go away. It is not that I do not like life; it is just that I am sick and tired of RSD and its pain.
 
"Thanks for this!" says:
AintSoBad (08-10-2011), dd in pain (08-11-2011)