Anyone facing the prospect of losing one's vision would be terrified, so of course you're scared. Just makes sense.

What's your treatment plan, now that you've got a diagnosis?

This is a great place to come, both for information & for company when you just need a friendly ear, someone who understands how you feel. The people here do.

I'd suggest that you go on over to the General & Rare Disease Forum & introduce yourself there. Start a thread if there's not one going with your problem: http://neurotalk.psychcentral.com/forum2.html

You might also want to look at the Mayo site if you haven't yet: http://www.mayoclinic.com/health/pse...erebri/DS00851

Keep coming back. Ask questions. Don't ever stop asking questions. & come by here any time.