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Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Hi Annie,
Thanks for that.
Many people on the DINET forum - people with postural orthostatic intolerance syndrome take mestinon as the Mayo clinic found it raised blood pressure on standing. Due to this my hospital consultant would like me to take Mestinon 3 times a day.
Unfortunately I just can't tolerate the stuff due to the GI issues. I take only when absolutely necessary.
I always wondered why Mestinon had that effect on people with POTS or NMH. This explains it a bit more.
Thanks for posting
Rach
__________________
Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.
My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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