Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Negative on all blood tests - tested at least 4 times for Musk and ACHr.
Negative SFEMG's - 4 times
Positive on ice pack test x 3
1 positive 1 negative Tensilon test.
I still believe I have MG, although I have now been diagnosed with Postural orthostatic tachycardia and ehler danlos syndrome. These 2 syndromes do not explain my worsening double vision or unilaterl / bilateral ptosis or my response to mestinon (resolves ptosis).
Rach
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Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.
My blog address is . .
Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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