Thread: cellcept
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Old 08-07-2011, 12:53 AM
Tbarney Tbarney is offline
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Join Date: May 2009
Location: Iowa
Posts: 163
15 yr Member
Tbarney Tbarney is offline
Member
 
Join Date: May 2009
Location: Iowa
Posts: 163
15 yr Member
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I posted something similar to this in another CellCept thread.

I have been on 1500 mg a day of CellCept for 2 years. Being on it has helped me to decrease the Mestinon. I used to take 60 mg 4 to 5 times a day. I now take 30 mg twice a day.

I had a thymectomy in August 2008, started CellCept in July 2009.

While taking it my weak leg muscles feel better. I have however developed plantar fascitis. My eye no longer droops, although my neuro says CellCept does not help occular MG. I don't get out of breath as easily.

I have only been sick once while on CC. I had viral pharyngitis this winter and was in bad shape, ER, etc. We decreased the CC and went on Prednisone. I finally got better after 3 months of this.

I am a teacher and have been taking it easy all summer. Our plans are to completely go off Mestinon, continue CellCept and take a small amount of Prednisone every other day when I go back to work. My school is not air conditioned and it has been near 100 degrees all of July.
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